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Northern Territory Cancer Registry (NTCR)
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Sample details

The NTCR was established in 1981 to collect information about cancer in the Northern Territory (NT), Australia. Information collected by the registry includes: name and address, sex, date of birth, Indigenous status, country of birth, the body site and type of each cancer, the institution or doctor who supplied the information, and for cancer patients who have died, details of their cause and date of death. Between 1991 and 2005, 6,063 new cases of cancer were diagnosed, of which 3,478 were males and 2,585 females. The average annual age-standardised cancer incidence rates were 487 cases per 100,000 population for males and 360 for females. During the 10-year period of 2006 to 2015, on average, 700 people were diagnosed with cancer each year in the NT; 58% were males and 19% were Aboriginal peoples.

Study design
Registry

Number of participants at first data collection

6,063 (new cases between 1991 and 2005)

7,005 (new cases between 2006 and 2015)

Recruitment is ongoing

Age at first data collection

Varied (participants)

Participant year of birth

Varied (participants)

Participant sex
All

Representative sample at baseline?
Cancer patients in the Northern Territory, Australia.

Sample features

Cancer patients
Dataset details

Country

Australia

Year of first data collection

1981

Primary Institutions

Northern Territory Department of Health and Families

Links

health.nt.gov.au/data-and-research/Innovation-and-research/northern-territory-cancer-registry

Profile paper DOI
Not available

Funders

Northern Territory Department of Health

Ongoing?
Yes

Data types collected

dataLinkage
Quantitative data collection
  • Secondary data
Qualitative data collection
  • None
Neuroimaging data collection
  • None
Linked or secondary data
  • Census data
  • Healthcare data
  • Medical birth registry
  • Mortality data
Features

Engagement

  • Community engagement
  • Keywords

    Cancer
    Cancer registry
    Disease prevalence
    Disease progression
    Morbidity and mortality
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