NUgene Project
The NUgene study is a longitudinal genetic database that began in 2002 from approximately 10,000 adult participants (14,000 as of 2024) from the patient population at the Northwestern University Medical Center in the United States of America. NUgene represents a clinically diverse population, including samples and data from healthy individuals and patients with common adult onset conditions.
Study design
Biobank
Number of participants at first data collection
14,000 (as of 2024) (participants)
Recruitment is ongoing
Age at first data collection
Varied (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
The five-county Chicago area (Cook, DuPage, Kane, Lake, McHenry, and Will counties) based on comparisons of sex, age, race, and ethnicity with census data.
Sample features
Country
Year of first data collection
2002
Primary Institutions
Northwestern University (NU)
Profile paper DOI
Funders
Northwestern Medicine
Ongoing?
Yes
Data types collected
- Interview – phone
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Secondary data
- Self-report questionnaire – online
- Interviews or focus groups
- Qualitative survey
- None
- Healthcare data
Engagement
Keywords
