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Pregnancy and Neonatal Diabetes Outcomes in Remote Australia Study (PANDORA)
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Sample details

The PANDORA Study is a prospective, observational pregnancy and birth cohort with a focus on the metabolic health of Indigenous Australians. Recruitment commenced in 2012 and was completed in February 2017. Participants included women with any type of diabetes in pregnancy, as well as women without diabetes in pregnancy and their children. Cohort participants include 1,140 women and 1,170 children from the Northern Territory, Australia. Approximately 50% of PANDORA women are Aboriginal and/or Torres Strait Islander women. Follow-up has included collecting data on maternal and child health, breastfeeding, diet, growth, and development at 18 months to 5 years of age.

Study design
Cohort - primary caregiver and child, Cohort - birth

Number of participants at first data collection

1,140 (mothers)

1,170 (children)

Age at first data collection

Birth (children)

> 16 years (mothers)

Participant year of birth

2012 - 2017 (children)

Varied (mothers)

Participant sex
All

Representative sample at baseline?
No

Sample features

Pregnant people
Racial and ethnic minorities
Dataset details

Country

Australia

Year of first data collection

2012

Primary Institutions

Menzies School of Health Research

Links

menzies.edu.au/page/Research/Projects/Diabetes/The_Northern_Territory_Diabetes_in_Pregnancy_Partnership_Project/

Profile paper DOI

doi.org/10.1093/ije/dyy046

Funders

National Health and Medical Research Council (NHMRC)

Ongoing?
Yes

Data types collected

mentalHealthData
dataLinkage
Quantitative data collection
  • Interview – phone
  • Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
  • Secondary data
  • Self-report questionnaire – online
Qualitative data collection
  • None
Neuroimaging data collection
  • None
Linked or secondary data
  • Healthcare data
Features

Engagement

  • Community engagement
  • Keywords

    Anthropometry
    Biological samples/biospecimens
    Diabetes
    Diet and nutrition
    Gestational diabetes mellitus (GDM)
    Pregnancy outcomes
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