Pathways in Autism Spectrum Disorder (Pathways in ASD)
The Pathways in ASD study examines the development of children and adolescents with ASD. In 2005, over 400 children with ASD were recruited at the time of diagnosis when aged between 2 and 4 years from 5 Canadian provinces (Nova Scotia, New Brunswick, Quebec, Ontario, and British Columbia). Participants have been assessed approximately annually across three stages of development: Phase I, early childhood (from the age of diagnosis to 6 years); Phase II, school-age (7 to 11 years); and Phase III, adolescence to emerging adulthood (12 to 19 years).
Study design
Cohort, Cohort - primary caregiver and child
Number of participants at first data collection
422 (participants)
Age at first data collection
2 - 4 years (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2005
Primary Institutions
Dalhousie University (Academic, Canada)
McGill University (Academic, Canada)
McMaster University (Academic, Canada)
University of Alberta (Academic, Canada)
University of British Columbia (UBC) (Academic, Canada)
Profile paper DOI
Not available
Funders
Alberta Innovates (Government, Canada)
Autism Speaks (Third Sector, United States of America)
Canadian Institutes of Health Research (CIHR, Instituts de recherche en santé du Canada, IRSC) (Research council, Canada)
Government of British Columbia (Government, Canada)
Kids Brain Health Network (KBHN) (Third Sector, Canada)
Ongoing?
Yes
Data types collected
- Audio or visual recordings (e.g. of child behaviour, facial expressions)
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Interview – face-to-face
- Interview – phone
- Secondary data
- Self-completed questionnaire – paper or computer assisted
- Self-completed questionnaire – unspecified
- None
- None
- None
Engagement
Keywords
Consortia and dataset groups
