Project Extreme Prematurity 1999 - 2000 cohort (PEP 1999 - 2000)
The PEP aims to study short- and long-term health and well-being of children born extremely prematurely. Participants include all children born in Norway between 1999 and 2000, with a gestational age lower than 28 weeks (extremely preterm) or a birth weight lower than 1000 grams (extremely low birth weight). Baseline data were collected for over 630 infants at birth, and participants have been followed up at 2 years, 5 years, 11 years, and most recently, at 19 to 20 years of age. There was also a control group of over 50 age-matched participants born full-term who completed cross-sectional assessments at 11 years of age.
Study design
Cohort, Cohort - birth, Cohort - clinical
Number of participants at first data collection
638 (participants)
Age at first data collection
Birth (participants)
Participant year of birth
1999 - 2000 (participants)
Participant sex
All
Representative sample at baseline?
All children born in Norway in 1999 to 2000 at a gestational age below 28 weeks (extremely preterm) or with a birth weight below 1000 gram (extremely low birth weight).
Sample features
Country
Year of first data collection
1999
Primary Institutions
Haukeland University Hospital (Haukeland universitetssjukehus) (Healthcare/Medical, Norway)
Norwegian Institute of Public Health (Folkehelseinstituttet, FHI, NIPH) (Government, Norway)
Profile paper DOI
Funders
Norwegian Research Council (Norges forskningsråd) (Research council, Norway)
Western Norway Regional Health Authority (Healthcare/Medical, Norway)
Ongoing?
Yes
Data types collected
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Interview – face-to-face
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Secondary data
- Self-completed questionnaire – paper or computer assisted
- Self-completed questionnaire – unspecified
- None
- Functional magnetic resonance imaging (fMRI)
- Magnetic Resonance Imaging (MRI)
- Education data
- Healthcare data
- Medical birth registry
Engagement
Keywords
Consortia and dataset groups
