Project Extreme Prematurity 1999 - 2000 cohort (PEP 1999 - 2000)
The PEP aims to study short- and long-term health and well-being of children born extremely prematurely. Participants include all children born in Norway between 1999 and 2000, with a gestational age lower than 28 weeks (extremely preterm) or a birth weight lower than 1000 grams (extremely low birth weight). Baseline data were collected for over 630 infants at birth, and participants have been followed up at 2 years, 5 years, 11 years, and most recently, at 19 to 20 years of age. There was also a control group of over 50 age-matched participants born full-term who completed cross-sectional assessments at 11 years of age.
Study design
Cohort, Cohort - birth, Cohort - clinical
Number of participants at first data collection
638 (participants)
Age at first data collection
Birth (participants)
Participant year of birth
1999 - 2000 (participants)
Participant sex
All
Representative sample at baseline?
All children born in Norway in 1999 to 2000 at a gestational age below 28 weeks (extremely preterm) or with a birth weight below 1000 gram (extremely low birth weight).
Sample features
Country
Year of first data collection
1999
Primary Institutions
Haukeland University Hospital (Haukeland universitetssjukehus)
Norwegian Institute of Public Health (Folkehelseinstituttet, FHI, NIPH)
Profile paper DOI
Funders
Norwegian Research Council (Norges forskningsråd)
Western Norway Regional Health Authority
Ongoing?
Yes
Data types collected
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Interview – face-to-face
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Secondary data
- Self-report questionnaire – paper or computer assisted
- Self-report questionnaire – unspecified
- None
- Functional magnetic resonance imaging (fMRI)
- Magnetic Resonance Imaging (MRI)
- Education data
- Healthcare data
- Medical birth registry
Engagement
Keywords
Consortia and dataset groups
