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Parkinsonism: Incidence and cognitive heterogeneity in Cambridgeshire (PICNICS)
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Sample details

PICNICS is an observational study tracking the progression of patients with Parkinson’s disease over time to understand the course and outcome of the disease and establish the pattern of evolution of subtypes. The study recruited 290 patients with Parkinson’s disease between 2008 and 2013, and is following them up every 18 months with clinical assessments, cognitive assessments, and biological sampling. At baseline, participants had new onset Parkinson's disease meeting UKPDS Brain Bank Criteria, no dementia diagnosis, and were residents in Cambridgeshire, England (United Kingdom).

Study design
Cohort - clinical

Number of participants at first data collection

290 (participants)

Age at first data collection

≥ 18 years (participants)

Participant year of birth

Varied (participants)

Participant sex
All

Representative sample at baseline?
No

Sample features

Patients and clinical populations
Dataset details
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Countries

England, United Kingdom of Great Britain and Northern Ireland

Year of first data collection

2008

Primary Institutions

University of Cambridge (Academic, United Kingdom)

Links

data.dpuk.ukserp.ac.uk/cohortdirectory/Item

neurodegenerationresearch.eu/cohort/parkinsonism-incidence-and-cognitive-heterogeneity-in-cambridgeshire/

Profile paper DOI
Not available

Funders

Cure Parkinson's (Third Sector, United Kingdom)

Medical Research Council (MRC) (Research council, United Kingdom)

Parkinson's UK (Third Sector, United Kingdom)

Van Geest Foundation (Third Sector, United Kingdom)

Ongoing?
Yes

Data types collected

mentalHealthData
dataLinkage
Quantitative data collection
  • Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
  • Interview – face-to-face
  • Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
  • Secondary data
Qualitative data collection
  • None
Neuroimaging data collection
  • None
Linked or secondary data
  • Healthcare data
Features

Engagement

  • None
  • Keywords

    Biological samples/biospecimens
    Biomarkers
    Clinical assessments
    Cognitive assessments
    Dementia
    Disease progression
    Neurodegeneration
    Neurological examination
    Parkinson's disease (PD)
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