Pienipainoiset riskilapset (PIPARI)
The PIPARI project aims to provide families with children born very preterm with reliable information on the child’s survival in early childhood and at school age. Participants include over 470 infants, including very low birth weight and very preterm infants born from 2001 to 2006 and full-term control infants born from 2001 to 2003, in Finland. Baseline data were collected at birth, and participants are being followed up into adulthood, evaluating physical, motor, cognitive, and neuropsychological development. Most recently, data were collected from the participants at age 17 years.
Study design
Cohort, Cohort - birth, Cohort - clinical
Number of participants at first data collection
232 (very preterm and very low birth weight infants)
246 (full-term control infants)
Age at first data collection
Birth (very preterm and very low birth weight infants)
Birth (full-term control infants)
Participant year of birth
2001 - 2006 (very preterm and very low birth weight infants)
2001 - 2003 (full-term control infants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2001
Primary Institutions
University of Turku (Turun yliopisto)
Links
platform.recap-preterm.eu/pub/study/pipari
doi.org/10.1016/j.jpeds.2007.09.051
platform.recap-preterm.eu/pub/dataset/pipari-perinatal-dataset
platform.recap-preterm.eu/pub/dataset/pipari-perinatal-nicu-dataset
Profile paper DOI
Not available
Funders
South-West Finnish Fund of Neonatal Research
Abo Akademi University
Arvo and Lea Ylppö Foundation (Arvo ja Lea Ylppö Säätiö)
Emil Aaltonen Foundation (Emil Aaltosen Säätiö)
Finnish Academy of Science and Letters (Suomalainen Tiedeakatemia ry)
Ongoing?
Yes
Data types collected
- Audio or visual recordings (e.g. of child behaviour, facial expressions)
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Interview – face-to-face
- None
- Cranial ultrasound
- Diffusion Tensor Imaging (DTI)
- Functional magnetic resonance imaging (fMRI)
- Magnetic Resonance Imaging (MRI)
- None
Engagement
Keywords
Consortia and dataset groups
