Personalized Parkinson Project (PPP)
Participants within the PPP have had a Parkinson's diagnosis within 5 years, are aged over 18 years, and are able to read and understand Dutch. Participants were recruited through the Dutch national ParkinsonNet as well as through hospitals and the Dutch Parkinson Patient Association. Participants are followed up annually with assessments at the study centre for three years, and then with an annual questionnaire for up to 5 years after their visit.
Study design
Cohort, Cohort - clinical
Number of participants at first data collection
517 (participants)
Age at first data collection
≥ 18 years (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2017
Primary Institutions
Radboud University Medical Center (Radboudumc)
Profile paper DOI
Funders
Health~Holland
Radboud University
Verily Life Sciences LLC
Ongoing?
No
Data types collected
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Self-report questionnaire – paper or computer assisted
- Wearable devices
- None
- Magnetic Resonance Imaging (MRI)
- Healthcare data
Engagement
Keywords
