Parkinsons Repository of Biomarkers and Networked Datasets (PRoBaND)
The Tracking Parkinson's Study aims to define and explain variation in the clinical phenotype of Parkinson's disease (PD) in relation to genotypic variation in a group of patients attending specialist clinics in the United Kingdom. The study consists of three groups of participants. The 'recent onset' participant group received a diagnosis in the past 3 years before recruitment and was followed up at 6-month intervals for the first 4 years and then every 18 months for another 3 years. 'Early onset' participants were diagnosed before the age of 50 years and were followed up at one year. The 'relatives' group comprises 344 siblings of the main study members and was followed up after 3 years.
Study design
Cohort, Cohort - clinical
Number of participants at first data collection
2,614 (participants)
Age at first data collection
18 - 90 years (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Countries
Year of first data collection
2012
Primary Institutions
National Health Service (NHS)
University of Glasgow (Oilthigh Ghlaschu)
Links
neurodegenerationresearch.eu/cohort/parkinsons-repository-of-biomarkers-and-networked-datasets/
Profile paper DOI
Funders
Parkinson's UK
Ongoing?
Yes
Data types collected
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- None
- Computerized tomography (CT)
- Magnetic Resonance Imaging (MRI)
- Positron Emission Tomography (PET)
- None
Engagement
Keywords
