Pediatric Resuscitation Prognostication and Outcomes Registry (PROGNOSE)
PROGNOS is a nationwide, multicenter registry in the Netherlands that aims to standardize data collection, unify neuromonitoring reports, and establish structured follow-up procedures for children who experience cardiac arrest. The registry involves approximately 500 children, as of April 2025, under the age of 18, with a previous event of cardiac arrest. Initial assessments occur at 3 to 6 months post-discharge, with the repeated assessments following 12, 24 months post-arrest; and at the ages of 5, 8, 12, and 17 years. No end date is set for the registry; it will remain open for ongoing data entry and hypothesis generation.
Study design
Registry
Number of participants at first data collection
500 (participants, as of 2025)
Recruitment is ongoing
Age at first data collection
<18 years (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2023
Primary Institutions
Erasmus MC Sophia Children's Hospital (Erasmus MC Sophia Kinderziekenhuis)
Links
centerwatch.com/clinical-trials/listings/NCT06938009/dutch-registry-of-pediatric-cardiac-arrest
ars.els-cdn.com/content/image/1-s2.0-S2666520425001134-mmc2.pdf
Profile paper DOI
Funders
No funding information available
Ongoing?
Yes
Data types collected
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Interview – face-to-face
- Secondary data
- Self-report questionnaire – online
- Self-report questionnaire – paper or computer assisted
- None
- Computerized tomography (CT)
- Magnetic Resonance Imaging (MRI)
- Healthcare data
Engagement
Keywords
