Project On Preterm and Small for Gestational Age Infants (POPS)
POPS is a nationwide multicentre birth cohort investigating the long-term health and neurodevelopmental outcomes of very preterm and/or very low birth weight infants born in the Netherlands in 1983. The original POPS cohort comprised 1,338 infants, representing 94% of infants born alive in the Netherlands in 1983 who were very preterm and/or very low birth weight. During the first two years of life, the infants were monitored four times. Further follow-up was conducted at the ages of 5, 9, 10–11, 14, 19, 28, and 35 years, with additional follow-up planned for age 40+.
Study design
Cohort - birth, Cohort
Number of participants at first data collection
1,338 (participants)
Age at first data collection
Birth (participants)
Participant year of birth
1983 (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
1983
Primary Institutions
Netherlands Organisation for Applied Scientific Research (Nederlandse Organisatie voor Toegepast Natuurwetenschappelijk Onderzoek, TNO) (Third Sector, Netherlands)
Profile paper DOI
Funders
Dutch Kidney Foundation (Nierstichting) (Third Sector, Netherlands)
European Union Horizon 2020 Research and Innovation Program (Research council, European Union)
Koninklijke Effatha Guyot Groep (Royal Effatha Guyot group) (Third Sector, Netherlands)
Netherlands Organisation for Applied Scientific Research (Nederlandse Organisatie voor Toegepast Natuurwetenschappelijk Onderzoek, TNO) (Third Sector, Netherlands)
Phelps Foundation (Third Sector, Netherlands)
Ongoing?
Yes
Data types collected
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Interview – face-to-face
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Secondary data
- Self-completed questionnaire – online
- Self-completed questionnaire – paper or computer assisted
- None
- None
- Healthcare data
- Mortality data
Engagement
Keywords
Consortia and dataset groups
