PsyCymru
PsyCymru is a research platform for psychosis research in Wales with two cohorts. The first cohort is a well characterised clinically-assessed cohort of 490 individuals, aged 16 and over with a diagnosis of schizophrenia, schizoaffective disorder, bipolar disorder or other psychotic illness. The second cohort is a much larger (12,097 individuals) but less well characterised population-based e-cohort of prevalent psychosis cases derived from primary care data in the Secure Anonymised Information Linkage (SAIL) databank using a previously validated algorithm. Both cohorts can be tracked prospectively and retrospectively using anonymised routinely collected electronic health and administrative data in SAIL.
Study design
Cohort
Number of participants at first data collection
490 (clinically-assessed cohort)
12,097 (e-cohort participants)
Age at first data collection
≥ 16 years (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
Prevalence cohort (e-cohort) of people suffering from psychotic disorders and who were 16 or over on 1/1/2010 and were registered to a general practice in Wales supplying SAIL continuously during 2010.
Sample features
Countries
Year of first data collection
2010
Primary Institutions
Swansea University
Profile paper DOI
Funders
Cathays Park
National Institute for Health and Care Research (NIHR)
Ongoing?
Yes
Data types collected
- Interview – face-to-face
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Secondary data
- None
- None
- Education data
- Geographic, spatial & environmental data
- Healthcare data
- Mortality data
Engagement
Keywords
