Rare Disease Cohorts (RaDiCo)
The objective of the RaDiCo project was to set up several rare disease (RD) e-cohorts with specific aims according to the idiosyncrasy of each cohort. For all the 13 included cohorts, a total of 11,650 included patients are expected at the end of the inclusion period (July 2027). As of April 2021, 5,558 patients had been included in 13 RD e-cohorts, covering 67 diseases from approximately 300 affiliated expert centers around France.
Study design
Cohort - clinical
Number of participants at first data collection
5,558 (participants)
Recruitment is ongoing
Age at first data collection
Varied (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2021
Primary Institutions
National Institute of Health and Medical Research (Institut National de la Santé et de la Recherche Médicale, INSERM)
Profile paper DOI
Funders
French National Research Agency (ANR)
Ongoing?
Yes
Data types collected
- Secondary data
- None
- None
- Existing research data
Engagement
Keywords
