Research on European Children and Adults born Preterm Nordic Registers (RECAP Nordic Registers)
The RECAP Nordic Registries are part of the RECAP Project, which aims to improve the health, development, and quality of life of individuals born very preterm. The study includes all children recorded in the Norwegian, Swedish, Finnish, and Danish Medical Birth Registries. In total, approximately 11,000 participants born between 1967 and 2016 are included. The dataset contains linked data spanning this entire period, including birth records, mortality data, census information, educational records, and healthcare data.
Study design
Registry
Number of participants at first data collection
2,913,802 (Norwegian participants)
4,406,718 (Swedish participants)
1,795,519 (Finnish participants)
2,806,393 (Danish participants)
Age at first data collection
Birth (Norwegian participants)
Birth (Swedish participants)
Birth (Finnish participants)
Birth (Danish participants)
Participant year of birth
1967 - 2016 (Norwegian participants)
1973 - 2016 (Swedish participants)
1987 - 2016 (Finnish participants)
1972 - 2017 (Danish participants)
Participant sex
All
Representative sample at baseline?
All children born in Norway, Sweden, Finland and Denmark during the study period.
Sample features
Countries
Year of first data collection
1967 (Norwegian participants)
1973 (Swedish participants)
1987 (Finnish participants)
1972 (Danish participants)
Primary Institutions
Finnish Institute for Health and Welfare (Terveyden ja hyvinvoinnin laitos, THL) (Government, Finland)
Karolinska Institute (Karolinska Institutet, KI) (Academic, Sweden)
Norwegian University of Science and Technology (Norges teknisk-naturvitenskapelige universitet, NTNU) (Academic, Norway)
University of Copenhagen (Københavns Universitet, KU) (Academic, Denmark)
Profile paper DOI
Funders
Academy of Finland (Research council, Finland)
European Union (EU) (Government, Europe)
New Opportunities for Research Funding Agency Cooperation in Europe (NORFACE) (Industry, Europe)
Signe and Ane Gyllenberg Foundation (Third Sector, Finland)
Sigrid Juselius Foundation (Third Sector, Finland)
Ongoing?
No
Data types collected
- Secondary data
- None
- None
- Census data
- Education data
- Healthcare data
- Medical birth registry
- Mortality data
- Other government data
- Social care data
Engagement
Keywords
Consortia and dataset groups
