REgistry of Pediatric Sjögren syndrome in Umcg-LongiTudinal (REPSULT)
REPSULT is an observational prospective cohort study investigating the disease presentation of children with Sjögren syndrome (SS)-like complaints. The study includes 100 patients of the outpatient clinic of the Department of Pediatric Rheumatology in the University Medical Center Groningen, Netherlands, with confirmed or probable SS before the age of 17 years, as well as 200 age and sex matched control patients visiting any of the pediatric, neurology, orthopedic, or surgery department outpatient clinics. All patients will be followed up for 10 years, with extensive evaluation after 1, 2, 5, and 10 years.
Study design
Cohort - clinical
Number of participants at first data collection
100 (pediatric onset Sjogren's syndrome patients)
200 (control patients)
Recruitment is ongoing
Age at first data collection
Varied (pediatric onset Sjogren's syndrome patients)
Varied (control patients)
Participant year of birth
Varied (pediatric onset Sjogren's syndrome patients)
Varied (control patients)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2020
Primary Institutions
University Medical Center Groningen (Universitair Medisch Centrum Groningen, UMCG)
Links
umcgresearchdatacatalogue.nl/UMCG/ssr-catalogue/all/cohorts/REPSULT
onderzoekmetmensen.nl/en/trial/49266
sjogrenexpertisecentrum.nl/wetenschap/wetenschappelijk-onderzoek/
Profile paper DOI
Not available
Funders
University Medical Center Groningen (UMCG)
Ongoing?
Yes
Data types collected
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Self-report questionnaire – unspecified
- None
- None
- None
Engagement
Keywords
