Secure Anonymised Information Linkage databank Dementia e-cohort (SAIL-DeC)
The SAIL DeC is a population-based electronic cohort (e-cohort) containing health-related information on people with and without diagnosed dementia in Wales, United Kingdom. The e-cohort comprises individuals born after 1st January 1900, for whom primary care data from a general practice (GP) in Wales were available between 2019 and 2021. By 2021, approximately 3 million people were included in the dataset. Participants were linked through a range of healthcare, education, and juridical databases, as well as the census. Participants were followed up through linked databases until 2021.
Study design
Registry
Number of participants at first data collection
3,000,000 (participants as of 2021)
Age at first data collection
≥ 18 years (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Countries
Year of first data collection
2019 (SAIL DeC)
1991 (Patient Episode Database for Wales (PEDW))
1995 (Annual District Death Extract (ADDE))
1990 (Welsh Longitudinal General Practice dataset (WLGP))
1990 (Welsh Demographic Service Dataset (WDSD))
Primary Institutions
University of Edinburgh (University o Edinburgh, Oilthigh Dhùn Èideann) (Academic, United Kingdom)
Profile paper DOI
Funders
Dementias Platform UK (DPUK) (Third Sector, United Kingdom)
Health Data Research UK (HDRUK) (Research council, United Kingdom)
Ongoing?
No
Data types collected
- Secondary data
- None
- None
- Census data
- Education data
- Healthcare data
- Police & judicial system data
- Social care data
Engagement
Keywords
Consortia and dataset groups
