Secure Anonymised Information Linkage databank Dementia e-cohort (SAIL-DeC)
The SAIL DeC is a population-based electronic cohort (e-cohort) containing health-related information on people with and without diagnosed dementia in Wales, United Kingdom. The participants are linked through a range of healthcare, education, and juridical databases, as well as the census. It is estimated that the sample population covers between 70 and 80% of the Welsh population.
Study design
Registry
Number of participants at first data collection
3,000,000 (participants as of 2021)
Recruitment is ongoing
Age at first data collection
≥ 18 years (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Countries
Year of first data collection
2019
Primary Institutions
University of Edinburgh (University o Edinburgh, Oilthigh Dhùn Èideann)
Links
portal.dementiasplatform.uk/Home/SAILDementiaECohort
web.healthdatagateway.org/dataset/f48b7c05-6a44-480c-84c6-4f7a684f29f8
Profile paper DOI
Funders
Dementias Platform UK (DPUK)
Health Data Research UK (HDRUK)
Ongoing?
Yes
Data types collected
- Secondary data
- None
- None
- Census data
- Education data
- Healthcare data
- Police & judicial system data
- Social care data
Engagement
Keywords
Consortia and dataset groups
