Swiss Childhood Cancer Survivor Study (SCCSS)
SCCSS investigates the long-term health and quality of life of childhood cancer survivors in Switzerland. Participants were recruited from the Swiss Childhood Cancer Registry, which includes individuals diagnosed with cancer before the age of 20 who survived at least five years post-diagnosis. The cohort comprises over 2,700 participants and encompasses a wide range of demographics representative of childhood cancer survivors in Switzerland. Follow-ups are conducted regularly throughout the participants’ lives to monitor their long-term health outcomes and quality of life changes.
Study design
Cohort
Number of participants at first data collection
2,738 (participants)
Recruitment is ongoing
Age at first data collection
Varied (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2007
Primary Institutions
University of Bern (Universität Bern)
Links
Profile paper DOI
Funders
Ambizione - Schweizerischer Nationalfonds
Childhood Cancer Switzerland (Kinderkrebs Schweiz)
European Union (EU)
Swiss Cancer League
Swiss Cancer Research (Krebsforschung Schweiz)
Ongoing?
Yes
Data types collected
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Interview – face-to-face
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Secondary data
- Self-report questionnaire – paper or computer assisted
- None
- None
- Healthcare data
- Other government data
Engagement
Keywords
