Scottish Diabetes Research Network Type 1 Bioresource Study (SDRNT1BIO)
SDRNT1BIO is an ongoing cohort study of over 6,000 patients across Scotland. Eligible participants were adults aged 16 years and above with a clinical diagnosis of Type 1 Diabetes Mellitus, Monogenic Diabetes, or Latent Autoimmune Disease of Adulthood. Recruitment was focused on 10 of the 14 National Health Service (NHS) Board regions in Scotland, with certain boards excluded due to remote geographical locations and low population density. The main sampling frame used was the comprehensive SCI-Diabetes electronic health care record, a national register of patients with diagnosed diabetes. Recruitment was primarily undertaken at diabetes outpatient clinics, with some additional recruitment in renal units. Baseline data collection took place between 1 December 2010 and 29 November 2013.
Study design
Biobank, Cohort - clinical
Number of participants at first data collection
6,127 (participants)
Recruitment is ongoing
Age at first data collection
≥ 16 years (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
Broadly representative of the Scottish national adult population with Type 1 Diabetes Mellitus.
Sample features
Countries
Year of first data collection
2010
Primary Institutions
University of Edinburgh (University o Edinburgh, Oilthigh Dhùn Èideann)
Profile paper DOI
Funders
Chief Scientist Office
Diabetes UK
Scottish Diabetes Research Network
Ongoing?
Yes
Data types collected
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Secondary data
- Self-report questionnaire – unspecified
- None
- None
- Healthcare data
- Medical birth registry
- Mortality data
Engagement
Keywords
