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San Francisco Mammography Registry (SFMR)
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Sample details

The SFMR Registry is a population-based research database designed to evaluate the performance of breast imaging and its relationship to breast cancer outcomes, comprising over 178,000 women recruited from radiology facilities across the San Francisco Bay Area. Participants were enrolled beginning in 1985 during routine breast imaging visits, where they completed health history questionnaires. Participants are followed up annually through repeated imaging and cancer outcome tracking via linkage with the California Cancer Registry and the Surveillance, Epidemiology, and End Results (SEER) program.

Study design
Registry

Number of participants at first data collection

178,887 (participants)

Recruitment is ongoing

Age at first data collection

Varied (participants)

Participant year of birth

Varied (participants)

Participant sex
Female

Representative sample at baseline?
No

Sample features

Service users
Women
Dataset details

Country

United States of America

Year of first data collection

1985

Primary Institutions

University of California, San Diego (UC San Diego)

Links

mammography.ucsf.edu/

grantome.com/grant/NIH/U01-CA063740-08

doi.org/10.1158/1055-9965.EPI-21-1379

Funders

Chevron Corporation

Marin County Health & Human Services

National Cancer Institute (NCI)

Patient-Centered Outcomes Research Institute (PCORI)

Ongoing?
Yes

Data types collected

dataLinkage
Quantitative data collection
  • Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
  • Secondary data
  • Self-report questionnaire – paper or computer assisted
Qualitative data collection
  • None
Neuroimaging data collection
  • None
Linked or secondary data
  • Healthcare data
Features

Engagement

  • Community engagement
  • Keywords

    Breast cancer
    Cancer registry
    Clinical outcomes
    Diagnostic markers
    Disease detection
    Disease prevention
    Physical health
    Population health
    Risk factors
    Women's health

    Consortia and dataset groups

    Breast Cancer Surveillance Consortium (BCSC)
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