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Swiss HIV Cohort Study (SHCS)
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Sample details

SHCS collects data on HIV-infected individuals from all over Switzerland. HIV-infected participants aged 16 years and older are recruited from university hospitals in Basel, Bern, Geneva, Lausanne, Zurich, and cantonal hospitals in St. Gallen and Ticino, as well as through private physicians. The study also recruits HIV-infected mothers and babies as part of the Swiss Mother and Child HIV Cohort Study (MoCHiV) sub-study. Between 1988 and 2022, the study expanded from 5,697 participants to over 21,000 participants. Participants are followed up semi-annually, ensuring regular and comprehensive data collection.

Study design
Cohort - clinical

Number of participants at first data collection

21,618 (participants as of 2022)

Recruitment is ongoing

Age at first data collection

≥ 16 years (participants)

Participant year of birth

Varied (participants)

Participant sex
All

Representative sample at baseline?
No

Sample features

Adults
Men who have sex with men (MSM)
People living with HIV
Substance users
Dataset details

Country

Switzerland

Year of first data collection

1988

Primary Institutions

Canton of St. Gallen-Hospital (Kantonsspital St.Gallen, KSSG)

Lausanne University Hospital (Centre hospitalier universitaire vaudois, CHUV)

University Hospital Zurich (Universitätsspital Zürich, USZ)

University Hospital of Basel (Universitätsspital Basel)

University Hospitals of Geneva (Hôpitaux Universitaires de Genève, HUG)

Links

shcs.ch/

doi.org/10.1093/ije/dyp321

Profile paper DOI

doi.org/10.1093/ije/dyab141

Funders

Federal Office for Public Health, FOPH (Bundesamt für Gesundheit, BAG)

AbbVie

Association for the fight against AIDS (Association contre le VIH et autres infections transmissibles)

Gilead Sciences

Private donations

Ongoing?
Yes

Data types collected

qualitativeData
dataLinkage
Quantitative data collection
  • Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
  • Interview – face-to-face
  • Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
  • Secondary data
Qualitative data collection
  • Interviews or focus groups
Neuroimaging data collection
  • None
Linked or secondary data
  • Healthcare data
Features

Engagement

  • Community engagement
  • Participant or community advisory groups
  • Patients, service users, lived experience involvement
  • Keywords

    Biological samples/biospecimens
    Disease risk
    Human immunodeficiency virus (HIV)
    Infectious disease
    Risk factors
    Sexually transmitted infections (STIs)
    Sub-studies
    Treatment adherence

    Consortia and dataset groups

    Antiretroviral Therapy Cohort Collaboration (ART-CC)
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