Scottish Intracranial Vascular Malformation Study (SIVMS)
SIVMS was a prospective, population-based study aimed at tracking the detection, frequency, and natural history of individuals with intracranial vascular malformations (IVMs). The study recruited 190 eligible participants over the age of 16, living in Scotland, and who had a diagnosis (after January 1999) of IVM. They were recruited by neurological and neuroimaging clinicians in Scotland between 1st January 1999 and 31st December 2003. Once recruited, participants receive annual questionnaires. Two sub-studies were also included within this study: the Health-related Quality of Life and Genetic Influences add-on projects. Data collection ended in 2003.
Study design
Cohort - clinical, Cohort
Number of participants at first data collection
190 (participants)
Age at first data collection
>16 years (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
The population living in Scotland, with an intracranial vascular malformation (IVM), aged 16 years or older.
Sample features
Countries
Year of first data collection
1999
Primary Institutions
Western General Hospital (Healthcare/Medical, Scotland)
Links
clinical-brain-sciences.ed.ac.uk/sites/default/files/2024-08/SAVIMS%20information%20leaflet.pdf
Profile paper DOI
Funders
Medical Research Council (MRC) (Research council, United Kingdom)
Scottish Health Executive (Government, Scotland)
Stroke Association (Third Sector, United Kingdom)
Ongoing?
No
Data types collected
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Secondary data
- Self-completed questionnaire – paper or computer assisted
- None
- Computerized tomography (CT)
- Magnetic Resonance Imaging (MRI)
- Healthcare data
- Mortality data
Engagement
Keywords
