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Safe Kidney Care Cohort Study (SKC Cohort Study)
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Sample details

The SKC Cohort Study investigated the frequency of chronic kidney disease (CKD) patient safety incidents (PSIs) in a population of adult kidney disease patients to determine how often people are exposed to treatments, tests and procedures that could increase their chances of having a PSI. In 2011, the study recruited 350 patients with kidney disease aged 21 years or older from Maryland, United States of America. Participants were followed up through telephone appointments every six months and in-person hospital visits annually until death or the end of the SKC study in 2016.

Study design
Cohort - clinical, Cohort

Number of participants at first data collection

350 (patients)

Age at first data collection

≥ 21 years (participants)

Participant year of birth

Varied (participants)

Participant sex
All

Representative sample at baseline?
No

Sample features

Chronic kidney disease patients
Patients and clinical populations
Dataset details

Country

United States of America

Year of first data collection

2011

Primary Institutions

University of Maryland, Baltimore (UMB)

Links

clinicaltrials.gov/show/NCT01407367

reporter.nih.gov/search/zsh55G4TYUuUC9oIheB6Yg/project-details/8704924

doi.org/10.34067/KID.0005802020

doi.org/10.2196/jmir.2848

Profile paper DOI
Not available

Funders

National Center for Advancing Translational Sciences (NCATS)

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

University of Maryland, Baltimore (UMB)

Ongoing?
No

Data types collected

dataLinkage
Quantitative data collection
  • Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
  • Interview – face-to-face
  • Interview – phone
  • Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
  • Secondary data
Qualitative data collection
  • None
Neuroimaging data collection
  • None
Linked or secondary data
  • Healthcare data
Features

Engagement

  • None
  • Keywords

    Biological samples/biospecimens
    Chronic kidney disease (CKD)
    Comorbidity
    Functional status
    Kidney disease
    Living conditions
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