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South Korean Twin Registry (SKTR)
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Sample details

The SKTR is an ongoing nationwide volunteer registry that collects data on South Korean twins and their families. As of 2019, the registry includes approximately 4,058 members, with participant recruitment beginning in 2001 through large maternity hospitals, twin mothers’ clubs, media advertisements, and schools. The cohorts consist of preschool-aged, school-aged, and adult twins, covering a demographic range from early childhood to young adulthood. Since its inception, the registry has continued to expand, with recent efforts focused on including twins from lower socio-economic backgrounds to ensure a diverse sample. Over the years, numerous sub-studies have been conducted using data from this registry, contributing valuable insights into various aspects of twin development, health, and behaviour.

Study design
Registry

Number of participants at first data collection

4,058 (participants as of December 2019)

Recruitment is ongoing

Age at first data collection

Varied (participants)

Participant year of birth

Varied (participants)

Participant sex
All

Representative sample at baseline?
No

Sample features

Adolescents
Children and young people
Dizygotic and monozygotic twins
Young adults
Dataset details

Country

South Korea

Year of first data collection

2002 (participants)

Primary Institutions

Kyung Hee University (경희대학교)

Mokpo National University (목포대학교)

Links

cambridge.org/core/journals/twin-research-and-human-genetics/article/seoul-twin-family-study-design-sampling-assessments-and-future-directions/E8C0AE0498887D7106EE0CDBAD13ED8B

Funders

National Research Foundation of Korea (NRF)

Pioneer Fund

Ongoing?
Yes

Data types collected

mentalHealthData
dataLinkage
Quantitative data collection
  • Interview – phone
  • Self-report questionnaire – online
  • Self-report questionnaire – paper or computer assisted
Qualitative data collection
  • None
Neuroimaging data collection
  • None
Linked or secondary data
  • Healthcare data
Features

Engagement

  • Community engagement
  • Keywords

    Gene-environment interactions (GxE)
    Genetics
    Mental health
    Sub-studies
    Zygosity

    Consortia and dataset groups

    COllaborative project of Development of Anthropometrical measures in Twins (CODATwins) project
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