South London Stroke Register: Improving the Lives of Stroke Survivors With Data (SLSR)

Sample details

The SLSR documents all first-in-lifetime stroke or Transient Ischaemic Attack (TIA) incidents in 22 electoral wards in the South London boroughs of Lambeth and Southwark from 1 January 1995 onwards. Eligible participants resided in Southwark or Lambeth at the time of their first stroke incident and had their first stroke incident since 1st January 1995. By 2006, the SLSR had over 3,300 participants of diverse ages, case mixes and severities, ethnicities, occupations and socioeconomic circumstances. By 2012, the cohort had increased in size to over 4,200 participants and by 2022, the register had over 7,700 participants.

Study design
Cohort - clinical, Registry

Number of participants at first data collection

7,784 (participants as of 2022)

Recruitment is ongoing

Age at first data collection

≥ 18 years (participants)

Participant year of birth

Varied (participants)

Participant sex
All

Representative sample at baseline?
First incident stoke or Transient Ischaemic Attack (TIA) patients in Lambeth and Southwark since 1 January 1995.

Sample features

Ethnically diverse populations

Dataset details

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Countries

England, United Kingdom of Great Britain and Northern Ireland

Year of first data collection

1995

Primary Institutions

King's College London (KCL)

Links

kcl.ac.uk/research/improving-the-lives-of-stroke-survivors-with-data

clinicaltrials.gov/study/NCT05298436

cheba.unsw.edu.au/consortia/strokog/studies/south-london-stroke-register-slsr

Profile paper DOI

doi.org/10.1016/j.jstrokecerebrovasdis.2023.107210

Funders

Department of Health and Social Care (DHSC)

Dunhill Medical Trust

European Union (EU)

Guy's and St Thomas' Charity

Guy's and St Thomas' NHS Foundation Trust

Ongoing?
Yes

Data types collected

Quantitative data collection

Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
Interview – face-to-face
Interview – phone
Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
Secondary data
Self-report questionnaire – paper or computer assisted

Qualitative data collection