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Special Needs and Autism Project (SNAP)
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Sample details

SNAP sought to quantify the prevalence of autism spectrum disorders (ASDs) in children in South Thames, United Kingdom. The population cohort is nearly 57,000 children born between July 1, 1990, and December 31, 1991, in 12 districts in South Thames, England. All children currently resident within those 12 districts with a birthdate within the relevant period were included. The children were then screened for a diagnosis of childhood autism, Asperger syndrome, pervasive developmental disorder not otherwise specified, or atypical autism. A total of 255 children (223 boys and 32 girls) and families received an in-depth assessment. Data collection for wave 1 took place between 2001 and 2003. Wave 3 data collection occurred between 2013 and 2015.

Study design
Cohort

Number of participants at first data collection

255 (participants)

Age at first data collection

12 years (participants)

Participant year of birth

1990 - 1991 (participants)

Participant sex
All

Representative sample at baseline?
Children diagnosed with autism in the United Kingdom aged 12 years in 2001.

Sample features

Autism Spectrum Disorder (ASD)
Children and young people
Dataset details
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Countries

England, United Kingdom of Great Britain and Northern Ireland

Year of first data collection

2001

Primary Institutions

Guy's and St Thomas' NHS Foundation Trust

Links

onlinelibrary.wiley.com/doi/10.1002/aur.2868

Funders

Autism Speaks

Department of Health and Social Care (DHSC)

Wellcome Trust

Ongoing?
Yes

Data types collected

mentalHealthData
dataLinkage
Quantitative data collection
  • Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
  • Interview – phone
  • Interview – unspecified
  • Secondary data
Qualitative data collection
  • None
Neuroimaging data collection
  • None
Linked or secondary data
  • Census data
  • Healthcare data
  • Tax, income & benefit data
Features

Engagement

  • Community engagement
  • Keywords

    Adaptive functioning
    Autism and Autism-like conditions
    Developmental disorders and psychopathology
    Mental health
    Predictors
    Quality of life
    Social outcomes
    Trajectory
    Young adulthood
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