Measuring Social Participation of People Living With Chronic Diseases (SPADIS)
The SPADIS project aims at measuring the social participation of people living in Belgium with one of the following chronic diseases: cancer, diabetes, cystic fibrosis, neuromuscular disease, and HIV/AIDS. The researchers aimed to understand the personal and external barriers and facilitators of their social participation and to inform the relevant decision-makers. The project enriches existing databases with additional information at the individual level, concerning the socioeconomic status and position as well as self-reported outcomes and experience.
Study design
Registry
Number of participants at first data collection
No information available
Recruitment is ongoing
Age at first data collection
Varied (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2022
Primary Institutions
Free University of Brussels (Université libre de Bruxelles, ULB)
Sciensano
Vrije Universiteit Brussel (VUB)
Links
sciensano.be/en/projects/measuring-social-participation-among-people-living-chronic-diseases
fair.healthdata.be/dataset/7958bc41-99ae-4b33-bb34-f74dc54f8dcb
Profile paper DOI
Funders
Sciensano
Ongoing?
Yes
Data types collected
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Secondary data
- Self-report questionnaire – online
- Interviews or focus groups
- None
- Existing research data
- Healthcare data
Engagement
Keywords
