Stanford Twin Registry

Sample details

The Stanford Twin Registry investigates the genetic and environmental influences on various traits using a cohort of twins from California. Participants are fraternal and identical twins and multiples of all ages, ranging from infancy to 90. Since its inception in 1995, the registry has continued to enrol participants, reaching over 6,000 participants in 2019. Participants are followed up through annual newsletters and various events to maintain engagement and update information.

Study design
Cohort - twin, Registry

Number of participants at first data collection

6,208 (participants as of 2019)

Recruitment is ongoing

Age at first data collection

0 - 90 years (participants)

Participant year of birth

Varied (participants)

Participant sex
All

Representative sample at baseline?
No

Sample features

Dizygotic and monozygotic twins

Dataset details

Country

United States of America

Year of first data collection

1995

Primary Institutions

SRI International

Stanford University

University of California, San Francisco Medical Center (UCSF Medical Center)

University of Texas MD Anderson Cancer Center

Links

med.stanford.edu/twin-registry.html

sri.com/press/story/75-years-of-innovation-twin-research-registry/

Profile paper DOI
Not available

Funders

National Institutes of Health (NIH)

Ongoing?
Yes

Data types collected

Quantitative data collection

Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
Interview – face-to-face
Physical environment assessment (e.g. pollution, mould)
Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
Self-report questionnaire – unspecified

Qualitative data collection