Swedish Twin Registry (STR)
STR focuses on understanding the genetic and environmental influences on various traits, behaviours, and diseases. The registry recruits twins of all ages and sexes from across Sweden. It includes specific cohorts such as Screening Across the Lifespan Twin Study (SALT) born 1886-1925, TwinGene (born 1959-1985), Study of Twin Adults — Genes and Environment (STAGE) born 1959-1985, and Child and Adolescent Twin Study in Sweden (CATSS) born 1992-2010. At baseline in 1961, over 21,000 participants were included. As of 2012, over 194,000 participants are included in the register. Follow-up intervals vary by cohort, ranging from every few years to more frequent intervals, ensuring comprehensive and ongoing data collection.
Study design
Cohort - twin, Registry
Number of participants at first data collection
194,842 (participants as of 2012)
Recruitment is ongoing
Age at first data collection
Varied (participants)
Participant year of birth
1886 - 2010 (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
1961 (participants)
Primary Institutions
Karolinska Institute (Karolinska Institutet, KI)
Links
ki.se/en/research/the-swedish-twin-registry
karolinska.corefacilities.org/service_center/show_external/3667
Profile paper DOI
Not available
Funders
Karolinska Institute (Karolinska Institutet, KI)
Swedish Research Council (Vetenskapsrådet)
Ongoing?
Yes
Data types collected
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Interview – face-to-face
- Interview – phone
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Secondary data
- Self-report questionnaire – online
- Self-report questionnaire – paper or computer assisted
- None
- None
- Census data
- Healthcare data
Engagement
Keywords
Consortia and dataset groups
