Swedish Dementia Registry (SveDem)

Sample details

SveDem is a registry developed to improve the quality of diagnostic work-up, treatment and care of patients with dementia disorders in Sweden. The database was initiated in 2007 and covers almost all of Sweden. Patients diagnosed with dementia are registered and followed up yearly until death. From 2007 to 2023, over 110,000 patients with dementia were registered. From 2021 to 2023, over 2,500 individuals with mild cognitive impairment (MCI) were also registered.

Study design
Registry

Number of participants at first data collection

114,733 (patients with dementia, as of 2023)

2,548 (patients with MCI, as of 2023)

Recruitment is ongoing

Age at first data collection

Varied (patients with dementia)

Varied (patients with MCI)

Participant year of birth

Varied (patients with dementia)

Varied (patients with MCI)

Participant sex
All

Representative sample at baseline?
No

Sample features

Patients and clinical populations

People with mild and major neurocognitive disorders

Population-based sample

Dataset details

Country

Sweden

Year of first data collection

2007

Primary Institutions

Karolinska University Hospital (Karolinska universitetssjukhuset)

Uppsala Clinical Research Center (UCR)

Links

ucr.uu.se/svedem/

doi.org/10.1016/j.jamda.2020.11.013

Profile paper DOI

doi.org/10.1371/journal.pone.0116538

Funders

Swedish Association of Local Authorities and Regions (SALAR)

Swedish Brain Power

Ongoing?
Yes

Data types collected

Quantitative data collection

Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
Interview – face-to-face
Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
Secondary data

Qualitative data collection