TrackOn-HD
TrackOn-HD was designed to investigate changes from health to early stage 2 of Huntington's disease (HD) using a wide range of measurements. Pre-HD and age- and sex-matched control participants were largely recruited from the existing Track-HD study, which was a precursor to TrackOn-HD. Early HD participants were recruited from university medical centres in England, France, Canada, and the Netherlands. At each centre, the study recruited participants between the ages of 18 and 65, unless they had previously participated in the Track-HD study. This resulted in a baseline cohort of 239 participants.
Study design
Cohort
Number of participants at first data collection
239 (participants)
Age at first data collection
18 - 65 years (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Countries
Year of first data collection
2012
Primary Institutions
Leiden University Medical Center (Leids Universitair Medisch Centrum, LUMC) (Healthcare/Medical, Netherlands)
Pierre and Marie Curie University (Université Pierre-et-Marie-Curie, UPMC) (Academic, France)
University College London (UCL) (Academic, United Kingdom)
University of British Columbia (UBC) (Academic, Canada)
Profile paper DOI
Funders
CHDI Foundation (Third Sector, United States of America)
Medical Research Council (MRC) (Research council, United Kingdom)
National Institute for Health and Care Research (NIHR) (Government, United Kingdom)
Wellcome Trust (Third Sector, United Kingdom)
Ongoing?
No
Data types collected
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- None
- Diffusion Tensor Imaging (DTI)
- Functional magnetic resonance imaging (fMRI)
- Magnetic Resonance Imaging (MRI)
- Positron Emission Tomography (PET)
- None
Engagement
Keywords
Consortia and dataset groups
