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Trans Youth of Color Study (TRUTH)
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Sample details

The overarching aims of the TRUTH Study were to conduct longitudinal research with a cohort of transgender minority youth (TGMY), explore factors that aid in the prevention of new human immunodeficiency virus (HIV) infection and transmission, and reduce HIV- and AIDS-related disparities by focusing on successful engagement in care. Longitudinal research (baseline and follow-up assessments every 6 months for 3 waves of data collection) followed a cohort of 108 transgender youth of color recruited in Los Angeles, California, United States. Participants in this study were aged 16 to 24 years, self-identified as transgender, gender nonconforming, or nonbinary, and identified as Black or African American, Latinx, Asian or Pacific Islander, Indigenous, or multiracial.

Study design
Cohort

Number of participants at first data collection

108 (participants)

Age at first data collection

16 - 24 years (participants)

Participant year of birth

Varied (participants)

Participant sex
All

Representative sample at baseline?
No

Sample features

Children and young people
Community-based sample
LGBTQIA+ populations
People living with HIV
Racial and ethnic minorities
Dataset details

Country

United States of America

Year of first data collection

2018

Primary Institutions

Children’s Hospital of Los Angeles (CHLA)

University of Southern California (USC)

Links

doi.org/10.2196/39232

Profile paper DOI

doi.org/10.2196/39207

Funders

National Institute on Drug Abuse (NIDA)

National Institutes of Health (NIH)

Ongoing?
Yes

Data types collected

mentalHealthData
qualitativeData
dataLinkage
Quantitative data collection
  • Interview – face-to-face
  • Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
  • Secondary data
  • Self-report questionnaire – paper or computer assisted
Qualitative data collection
  • Interviews or focus groups
Neuroimaging data collection
  • None
Linked or secondary data
  • Healthcare data
  • Police & judicial system data
Features

Engagement

  • Patients, service users, lived experience involvement
  • Participant or community advisory groups
  • Community engagement
  • Keywords

    Acquired immunodeficiency syndrome (AIDS)
    Biological samples/biospecimens
    Discrimination
    Human development
    Human immunodeficiency virus (HIV)
    Racial minorities
    Sexual behaviour
    Sexual health and function
    Sexuality and gender identity
    Sexually transmitted infections (STIs)
    Substance use

    Consortia and dataset groups

    HYM and TRUTH
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