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Uppsala/Umeå Comprehensive Cancer Consortium (U-CAN)
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Sample details

U-CAN aims to create a well-structured multidisciplinary clinical information database and a biobank on a large number of cancer patients to enable translational and clinical cancer research. The project began in 2010 and collects data from hospitals in the regions of Uppsala, Umeå, Gävle, Falun, Karlstad, Eskilstuna and Västerås in Sweden. The patients recruited to the U-CAN sample collection area include adults diagnosed with any of the selected cancer types, living primarily in the counties of Uppsala and Vasterbotten or who have been referred to two university hospitals for diagnosis, treatment and/or follow-up from surrounding counties. As of the end of 2024, almost 30,000 participants have been included in the study and are assessed at diagnosis and prior to any impact on the tumour (e.g. surgery, radiation or drug treatment). Participants are followed up at several points throughout their cancer treatment and at first relapse or evidence of progressive disease.

Study design
Biobank, Registry

Number of participants at first data collection

29,207 (participants, as of 2024)

Recruitment is ongoing

Age at first data collection

≥ 18 years (participants)

Participant year of birth

Varied (participants)

Participant sex
All

Representative sample at baseline?
No

Sample features

Adults
Cancer patients
Community-based sample
Control participants
Patients and clinical populations
Dataset details

Country

Sweden

Year of first data collection

2010

Primary Institutions

KTH Royal Institute of Technology (Kungliga Tekniska högskolan)

Stockholm University (Stockholms universitet)

Umeå University (Umeå Universitet)

Uppsala University (Uppsala universitet, UU)

Links

uu.se/en/research/u-can/

doi.org/10.1111/bjh.19732

Funders

County Council of Uppsala

Government of the Kingdom of Sweden (Konungariket Sveriges regering)

Uppsala University

Ongoing?
Yes

Data types collected

mentalHealthData
dataLinkage
Quantitative data collection
  • Secondary data
  • Self-report questionnaire – paper or computer assisted
Qualitative data collection
  • None
Neuroimaging data collection
  • None
Linked or secondary data
  • Healthcare data
Features

Engagement

  • None
  • Keywords

    Biological samples/biospecimens
    Cancer
    Clinical assessments
    Electronic health records
    Healthcare access and use
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