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UP'S: A Cohort Study on Recovery in Psychotic Disorder Patients
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Sample details

The current study is a multicentre, longitudinal cohort study on recovery from psychotic disorders. The research population will consist of clients who receive treatment for a first episode psychosis or have a diagnosis of schizophrenia or another psychotic disorder (schizoaffective disorder, delusional disorder, or psychosis not otherwise specified) and who are between 18 and 65 years old. They will be recruited at different mental health care centers in the Netherlands, in various teams specialising in in- and outpatient care for severe mental illnesses. All primary and secondary outcome measures will be assessed every year. All other questionnaires and procedures will be repeated every 2 years, with the last measurement 10 years after baseline.

Study design
Cohort - clinical

Number of participants at first data collection

30 (participants)

Recruitment is ongoing

Age at first data collection

18 - 65 years (participants)

Participant year of birth

Varied (participants)

Participant sex
All

Representative sample at baseline?
No

Sample features

Patients and clinical populations
Psychosis
Dataset details

Country

Netherlands

Year of first data collection

2020

Primary Institutions

Bavo Europoort (now known as Antes)

Emergis

GGz Breburg

GGz Delfland

GGz Oost-Brabant

Links
No website available

Profile paper DOI

doi.org/10.3389/fpsyt.2020.609530

Funders

Bavo Europoort (now known as Antes)

City of Rotterdam

Emergis

GGz Breburg

GGz Delfland

Ongoing?
Yes

Data types collected

mentalHealthData
dataLinkage
Quantitative data collection
  • Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
  • Interview – face-to-face
  • Interview – phone
  • Secondary data
Qualitative data collection
  • None
Neuroimaging data collection
  • None
Linked or secondary data
  • Census data
  • Healthcare data
Features

Engagement

  • Patients, service users, lived experience involvement
  • Participant or community advisory groups
  • Keywords

    Clinical outcomes
    Cognitive function
    Electronic health records
    Psychiatry
    Psychosis and psychotic disorders
    Recovery
    Social conditions and environment
    Stigma
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