Victorian Cerebral Palsy Register (VCPR)
The VCPR collects information about people with cerebral palsy born since 1970 in the Australian state of Victoria. As of 2024, the Victorian Register is one of the largest single cerebral palsy registers in the world (with around 100 new cases added yearly), placing it in a unique position to contribute to what is known about cerebral palsy worldwide. The ultimate goal of the registry is to advance knowledge in an effort to provide better help and support for everyone with cerebral palsy, their families, and the community in which they live. VCPR aims to describe trends in the prevalence and clinical profile of cerebral palsy, investigate causal pathways, and identify potential avenues for prevention or amelioration of the condition.
Study design
Cohort - clinical, Registry
Number of participants at first data collection
6,400 (participants as of February 2023)
Recruitment is ongoing
Age at first data collection
Varied (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
1987
Primary Institutions
Mercy Hospital for Women (Healthcare/Medical, Australia)
Monash Children’s Hospital (Healthcare/Medical, Australia)
Murdoch Children’s Research Institute (MCRI) (Research, Australia)
Royal Children's Hospital (RCH) (Healthcare/Medical, Australia)
Royal Women’s Hospital (Healthcare/Medical, Australia)
Profile paper DOI
Not available
Funders
Cerebral Palsy Alliance (Third Sector, Australia)
Lorenzo and Pamela Galli Research Trust (Research council, Australia)
Royal Children’s Hospital Research Foundation (Third Sector, Australia)
Victorian Department of Health and Human Services (Government, Australia)
Ongoing?
Yes
Data types collected
- Secondary data
- None
- None
- Healthcare data
- Mortality data
Engagement
Keywords
