A clinical and laboratory databank for patients with Inborn Errors of Metabolism (VICIEM)
VICIEM is a clinical and laboratory databank including data from over 1,600 child patients with Inborn Errors of Metabolism (inherited metabolic diseases). The databank consolidates disparate records into a single unified electronic database and includes data on patients treated at the Royal Children’s Hospital in Melbourne, Australia, since 1970.
Study design
Registry
Number of participants at first data collection
1,668 (participants as of November 2021)
Recruitment is ongoing
Age at first data collection
Varied (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
1970 (medical records)
2013 (VICIEM inception)
Primary Institutions
Murdoch Children’s Research Institute (MCRI)
Royal Children's Hospital (RCH)
Links
lifecourse.melbournechildrens.com/cohorts/viciem/
web.archive.org/web/20250312024446/https://lifecourse.org.au/cohorts/viciem/
Profile paper DOI
Not available
Funders
Australian Communities Foundation (ACF)
The N E Renton Bequest
Ongoing?
Yes
Data types collected
- Secondary data
- None
- None
- Healthcare data
Engagement
Keywords
