West Japan Twins and Higher Order Multiple Births Registry
The West Japan Twins and Higher Order Multiple Births Registry investigates human genetics and maternal and child health, in a cohort of twins and higher order multiples from West Japan. Twins born after 1977, triplets born after 1978, quadruplets born after 1990, and quintuplets born after 1993, were recruited starting in the 1990s. Since its inception, the registry has continued to enrol new participants, significantly expanding its database and reaching over 7,000 twins and 4,000 higher order multiples by 2019. Follow-up questionnaires are sent out every 3-4 years to monitor the development and health of the participants.
Study design
Registry, Cohort - twin
Number of participants at first data collection
7,800 (twin participants)
4,155 (triplet participants)
72 (quadruplet participants)
15 (quintuplet participants)
Recruitment is ongoing
Age at first data collection
Varied (participants)
Participant year of birth
1977 - present (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
1993
Primary Institutions
Osaka City University (大阪市立大学, OCU)
Profile paper DOI
Funders
Ministry of Education, Culture, Sports, Science and Technology (MEXT/Monbusho)
Ongoing?
Yes
Data types collected
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Interview – face-to-face
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Secondary data
- Self-report questionnaire – paper or computer assisted
- None
- None
- Education data
- Healthcare data
Engagement
Keywords
Consortia and dataset groups
